Stress and quality of life in patients with epidermolysis bullosa

The aim is to compare the degree of stress in patients with epidermolysis bullosa (eb) to their chronic diseases and explore the relationship between age of onset and the stress and evaluate their quality of life. This is a descriptive study, in which self-report questionnaires were used. Perceived stress scale was applied and the Spanish version of the Dermatology Life Quality Index (dlqi) in 18 patients with epidermolysis bullosa (simple, binding and dystrophic) aged from 14 to 58 years of age, who belong to the association debra Mexico. The main results the correlation between stress and age, negative and significant (r = -.601, p =.008). Regarding quality of life, only four subjects achieved scores to be classified in the category of "much effect on the patient's life", and none of the participants reached the highest category of impact on quality of life. The average stress level was 21.67 (sd = 6.54) and median obtained was 23. We concluded that our study, participants belong to an association dedicated to serving people with epidermolysis bullosa may be a factor that benefits both quality of life and stress. Moreover, the correlation between stress and age suggests that as time goes by, they adapt to the complications of the disease.