The Global Alliance for Chronic Diseases researchers’ statement on non-communicable disease research with Indigenous peoples

David P. Meharg; Violet Naanyu; Boe Rambaldini; Marilyn J. Clarke; Cameron Lacey; Felix Jebasingh; Patricio Lopez-Jaramillo; Gillian S. Gould; Benjamin Aceves; Jennifer A. Alison; Michael Chaiton; Jun Chen; Francisco Gonzalez-Salazar; Felicity Goodyear-Smith; Kylie G. Gwynne; Kylie S. Lee; Diana MacKay; Louise Maple-Brown; Brian L. Mishara; Gustavo Nigenda; Anusha Ramani-Chander; Stephen G. Sherwood; Nihal Thomas; Amanda G. Thrift; Michael Anderson

doi:10.1016/S2214-109X(23)00039-6

The Global Alliance for Chronic Diseases researchers’ statement on non-communicable disease research with Indigenous peoples

David P. Meharg, Violet Naanyu, Boe Rambaldini, Marilyn J. Clarke, Cameron Lacey, Felix Jebasingh, Patricio Lopez-Jaramillo, Gillian S. Gould, Benjamin Aceves, Jennifer A. Alison, Michael Chaiton, Jun Chen, Francisco Gonzalez-Salazar, Felicity Goodyear-Smith, Kylie G. Gwynne, Kylie S. Lee, Diana MacKay, Louise Maple-Brown, Brian L. Mishara, Gustavo NigendaAnusha Ramani-Chander, Stephen G. Sherwood, Nihal Thomas, Amanda G. Thrift, Michael Anderson

Research output: Contribution to journal › Comment/debate › peer-review

3 Citations (Scopus)

Original language	English
Pages (from-to)	e324-e326
Journal	The Lancet Global Health
Volume	11
Issue number	3
DOIs	https://doi.org/10.1016/S2214-109X(23)00039-6
Publication status	Published - Mar 2023
Externally published	Yes

Bibliographical note

Funding Information:
Ideally, decolonising research practices will involve decolonising the funding by ascertaining which institutions are eligible for funding and mapping how funding is disbursed by funders. Currently, most public funders provide a grant award to a single administering research institution (the employer of the principal investigator) with money then flowing to other participating investigators and institutions. This financial control model is tolerated among academic researchers; however, it can foster a power imbalance between the researchers and the community. Co-design, including a choice of research topic, can help investigators and methodologies ameliorate this power imbalance, but cannot fully overcome it. Research governance must include co-leadership, data ownership, sharing, intellectual property rights, and ethical considerations congruent with cultural values. Budgetary allocations among the research institutions and Indigenous communities must be clearly articulated in research proposals to promote maximum self-determination. Appropriate and equitable governance should be an important consideration in funders’ decisions to support a proposal. Funding organisations must be active participants in the decolonisation of the research process.

All Science Journal Classification (ASJC) codes

General Medicine

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

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10.1016/S2214-109X(23)00039-6

Cite this

Meharg, D. P., Naanyu, V., Rambaldini, B., Clarke, M. J., Lacey, C., Jebasingh, F., Lopez-Jaramillo, P., Gould, G. S., Aceves, B., Alison, J. A., Chaiton, M., Chen, J., Gonzalez-Salazar, F., Goodyear-Smith, F., Gwynne, K. G., Lee, K. S., MacKay, D., Maple-Brown, L., Mishara, B. L., ... Anderson, M. (2023). The Global Alliance for Chronic Diseases researchers’ statement on non-communicable disease research with Indigenous peoples. The Lancet Global Health, 11(3), e324-e326. https://doi.org/10.1016/S2214-109X(23)00039-6

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title = "The Global Alliance for Chronic Diseases researchers{\textquoteright} statement on non-communicable disease research with Indigenous peoples",

author = "Meharg, {David P.} and Violet Naanyu and Boe Rambaldini and Clarke, {Marilyn J.} and Cameron Lacey and Felix Jebasingh and Patricio Lopez-Jaramillo and Gould, {Gillian S.} and Benjamin Aceves and Alison, {Jennifer A.} and Michael Chaiton and Jun Chen and Francisco Gonzalez-Salazar and Felicity Goodyear-Smith and Gwynne, {Kylie G.} and Lee, {Kylie S.} and Diana MacKay and Louise Maple-Brown and Mishara, {Brian L.} and Gustavo Nigenda and Anusha Ramani-Chander and Sherwood, {Stephen G.} and Nihal Thomas and Thrift, {Amanda G.} and Michael Anderson",

note = "Funding Information: Ideally, decolonising research practices will involve decolonising the funding by ascertaining which institutions are eligible for funding and mapping how funding is disbursed by funders. Currently, most public funders provide a grant award to a single administering research institution (the employer of the principal investigator) with money then flowing to other participating investigators and institutions. This financial control model is tolerated among academic researchers; however, it can foster a power imbalance between the researchers and the community. Co-design, including a choice of research topic, can help investigators and methodologies ameliorate this power imbalance, but cannot fully overcome it. Research governance must include co-leadership, data ownership, sharing, intellectual property rights, and ethical considerations congruent with cultural values. Budgetary allocations among the research institutions and Indigenous communities must be clearly articulated in research proposals to promote maximum self-determination. Appropriate and equitable governance should be an important consideration in funders{\textquoteright} decisions to support a proposal. Funding organisations must be active participants in the decolonisation of the research process. ",

year = "2023",

month = mar,

doi = "10.1016/S2214-109X(23)00039-6",

language = "English",

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Meharg, DP, Naanyu, V, Rambaldini, B, Clarke, MJ, Lacey, C, Jebasingh, F, Lopez-Jaramillo, P, Gould, GS, Aceves, B, Alison, JA, Chaiton, M, Chen, J, Gonzalez-Salazar, F, Goodyear-Smith, F, Gwynne, KG, Lee, KS, MacKay, D, Maple-Brown, L, Mishara, BL, Nigenda, G, Ramani-Chander, A, Sherwood, SG, Thomas, N, Thrift, AG & Anderson, M 2023, 'The Global Alliance for Chronic Diseases researchers’ statement on non-communicable disease research with Indigenous peoples', The Lancet Global Health, vol. 11, no. 3, pp. e324-e326. https://doi.org/10.1016/S2214-109X(23)00039-6

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T1 - The Global Alliance for Chronic Diseases researchers’ statement on non-communicable disease research with Indigenous peoples

AU - Meharg, David P.

AU - Naanyu, Violet

AU - Rambaldini, Boe

AU - Clarke, Marilyn J.

AU - Lacey, Cameron

AU - Jebasingh, Felix

AU - Lopez-Jaramillo, Patricio

AU - Gould, Gillian S.

AU - Aceves, Benjamin

AU - Alison, Jennifer A.

AU - Chaiton, Michael

AU - Chen, Jun

AU - Gonzalez-Salazar, Francisco

AU - Goodyear-Smith, Felicity

AU - Gwynne, Kylie G.

AU - Lee, Kylie S.

AU - MacKay, Diana

AU - Maple-Brown, Louise

AU - Mishara, Brian L.

AU - Nigenda, Gustavo

AU - Ramani-Chander, Anusha

AU - Sherwood, Stephen G.

AU - Thomas, Nihal

AU - Thrift, Amanda G.

AU - Anderson, Michael

N1 - Funding Information: Ideally, decolonising research practices will involve decolonising the funding by ascertaining which institutions are eligible for funding and mapping how funding is disbursed by funders. Currently, most public funders provide a grant award to a single administering research institution (the employer of the principal investigator) with money then flowing to other participating investigators and institutions. This financial control model is tolerated among academic researchers; however, it can foster a power imbalance between the researchers and the community. Co-design, including a choice of research topic, can help investigators and methodologies ameliorate this power imbalance, but cannot fully overcome it. Research governance must include co-leadership, data ownership, sharing, intellectual property rights, and ethical considerations congruent with cultural values. Budgetary allocations among the research institutions and Indigenous communities must be clearly articulated in research proposals to promote maximum self-determination. Appropriate and equitable governance should be an important consideration in funders’ decisions to support a proposal. Funding organisations must be active participants in the decolonisation of the research process.

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ER -

The Global Alliance for Chronic Diseases researchers’ statement on non-communicable disease research with Indigenous peoples

Bibliographical note

All Science Journal Classification (ASJC) codes

UN SDGs

Access to Document

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Cite this