Stress and quality of life in patients with epidermolysis bullosa

Juan Ángel Reyna Medina, Mónica Teresa González Ramírez, Julio C. Salas-Alanis

Research output: Contribution to journalArticle

Abstract

The aim is to compare the degree of stress in patients with epidermolysis bullosa (eb) to their chronic diseases and explore the relationship between age of onset and the stress and evaluate their quality of life. This is a descriptive study, in which self-report questionnaires were used. Perceived stress scale was applied and the Spanish version of the Dermatology Life Quality Index (dlqi) in 18 patients with epidermolysis bullosa (simple, binding and dystrophic) aged from 14 to 58 years of age, who belong to the association debra Mexico. The main results the correlation between stress and age, negative and significant (r = -.601, p =.008). Regarding quality of life, only four subjects achieved scores to be classified in the category of "much effect on the patient's life", and none of the participants reached the highest category of impact on quality of life. The average stress level was 21.67 (sd = 6.54) and median obtained was 23. We concluded that our study, participants belong to an association dedicated to serving people with epidermolysis bullosa may be a factor that benefits both quality of life and stress. Moreover, the correlation between stress and age suggests that as time goes by, they adapt to the complications of the disease.
Original languageEnglish
Pages (from-to)110-116
Number of pages7
JournalDermatologia Cosmetica, Medica y Quirurgica
Volume14
Issue number2
Publication statusPublished - 1 Apr 2016

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Epidermolysis Bullosa
Quality of Life
Dermatology
Mexico
Age of Onset
Psychological Stress
Self Report
Chronic Disease

All Science Journal Classification (ASJC) codes

  • Surgery
  • Dermatology

Cite this

Medina, J. Á. R., Ramírez, M. T. G., & Salas-Alanis, J. C. (2016). Stress and quality of life in patients with epidermolysis bullosa. Dermatologia Cosmetica, Medica y Quirurgica, 14(2), 110-116.
Medina, Juan Ángel Reyna ; Ramírez, Mónica Teresa González ; Salas-Alanis, Julio C. / Stress and quality of life in patients with epidermolysis bullosa. In: Dermatologia Cosmetica, Medica y Quirurgica. 2016 ; Vol. 14, No. 2. pp. 110-116.
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Medina, JÁR, Ramírez, MTG & Salas-Alanis, JC 2016, 'Stress and quality of life in patients with epidermolysis bullosa', Dermatologia Cosmetica, Medica y Quirurgica, vol. 14, no. 2, pp. 110-116.

Stress and quality of life in patients with epidermolysis bullosa. / Medina, Juan Ángel Reyna; Ramírez, Mónica Teresa González; Salas-Alanis, Julio C.

In: Dermatologia Cosmetica, Medica y Quirurgica, Vol. 14, No. 2, 01.04.2016, p. 110-116.

Research output: Contribution to journalArticle

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T1 - Stress and quality of life in patients with epidermolysis bullosa

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AB - The aim is to compare the degree of stress in patients with epidermolysis bullosa (eb) to their chronic diseases and explore the relationship between age of onset and the stress and evaluate their quality of life. This is a descriptive study, in which self-report questionnaires were used. Perceived stress scale was applied and the Spanish version of the Dermatology Life Quality Index (dlqi) in 18 patients with epidermolysis bullosa (simple, binding and dystrophic) aged from 14 to 58 years of age, who belong to the association debra Mexico. The main results the correlation between stress and age, negative and significant (r = -.601, p =.008). Regarding quality of life, only four subjects achieved scores to be classified in the category of "much effect on the patient's life", and none of the participants reached the highest category of impact on quality of life. The average stress level was 21.67 (sd = 6.54) and median obtained was 23. We concluded that our study, participants belong to an association dedicated to serving people with epidermolysis bullosa may be a factor that benefits both quality of life and stress. Moreover, the correlation between stress and age suggests that as time goes by, they adapt to the complications of the disease.

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Medina JÁR, Ramírez MTG, Salas-Alanis JC. Stress and quality of life in patients with epidermolysis bullosa. Dermatologia Cosmetica, Medica y Quirurgica. 2016 Apr 1;14(2):110-116.